Were you just diagnosed with a form of Inflammatory Bowel Disease?
I’m sure you’re going through a lot of emotions right now as you begin to search for information on this autoimmune disease. As you navigate through the pages of the internet looking for answers, please remember this: Your body is exactly that. Your body. Designed to fit you and you alone.
You have choices.
What works for someone else might not work for you.
Do the research to empower yourself to be your own advocate. Trust me, you will need to be.
You are not alone!
Here are links to some amazing IBD resources and patient advocates, and they can point you in the direction of more resources if needed. There are many more advocates out there than what I have listed below, these are just some I found most helpful at diagnosis. Check out the hashtag #ibdfamily or #ibd on social media to find more. Please reach out if you have questions. There’s a great community of patients and doctors out there willing and ready to help.
Foundations and Hospitals
The Crohn’s and Colitis Foundation
IBD School- University of Michigan
Crohn’s and Colitis Canada
About IBD (Amber Tresca)
Colitis Ninja (Amber Elder)
Eric of VeganOstomy
Alexa Federico, NTP
Girls With Guts
Maggie Baldwin (great Youtube channel too!)