Resources

Ulcerative Colitis and Crohn’s Disease

Were you just diagnosed with a form of Inflammatory Bowel Disease?

I’m sure you’re going through a lot of emotions right now as you begin to search for information on this autoimmune disease. As you navigate through the pages of the internet looking for answers, please remember this: Your body is exactly that. Your body. Designed to fit you and you alone.

You have choices.

What works for someone else might not work for you.

Do the research to empower yourself to be your own advocate. Trust me, you will need to be.

You are not alone!

Here are links to some amazing IBD resources and patient advocates, and they can point you in the direction of more resources if needed. There are many more advocates out there than what I have listed below, these are just some I found most helpful at diagnosis. Check out the hashtag #ibdfamily or #ibd on social media to find more. Please reach out if you have questions. There’s a great community of patients and doctors out there willing and ready to help.

Foundations and Hospitals

The Crohn’s and Colitis Foundation

http://www.crohnscolitisfoundation.org/

IBD School- University of Michigan

http://www.med.umich.edu/ibd/school/index.html

Crohn’s and Colitis Canada

http://www.crohnsandcolitis.ca/

 

IBD Advocates

About IBD (Amber Tresca)

http://aboutibd.com/

Colitis Ninja (Amber Elder)

http://colitisninja.com

Natalie Hayden

http://lightscameracrohns.com

Eric of VeganOstomy

http://veganostomy.ca

Alexa Federico, NTP

http://girlinhealing.com

Girls With Guts

http://www.girlswithguts.org

Maggie Baldwin (great Youtube channel too!)

http://letstalkibd.com/

Sara Ringer

www.inflamed-and-untamed.com

Clinical Trials

Clara Health

www.clarahealth.com